Header_Ethical and Epistemic

Ethical and Epistemic Entanglements of Person-Centred Epidemiological Measures

14 mars 2018 • 12h30 14h
McGill University, Institute for Health and Social Policy, Charles Meredith building, 1130 Pine Ave West
7 mars 2018


Ethical and Epistemic Entanglements of Person-Centred Epidemiological Measures


Leah McClimans, Associate Professor of Philosophy, University of South Carolina


La conférence est co-organisée avec le Réseau montréalais de philosophie des sciences, l‘Institute for Health and Social Policy (McGill University), la Chaire de recherche du Canada en philosophie des sciences de la vie, la Chaire ÉSOPE de philosophie de l’Université de Montréal, l’Université Concordia et le Centre de recherche interuniversaire sur la science et la technologie (CIRST).

Résumé | Abstract

Since the 1970s epidemiological measures focusing on “quality of life” have figured increasingly as endpoints in clinical trials. In this talk I begin by examining the history of these measures, which were later relabeled “patient-reported outcome measures” or PROMs. The ability of these measures to faithfully report patient concerns and/or quality of life has been contested for much of their history. I will argue that this ethical concern is linked to epistemic concerns about the validity, interpretability and responsiveness of these measures. I will suggest that researchers cannot put the ethical question to one side and move forward with the methodological and epistemic ones.

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Mis à jour le 7 mars 2018 à 16 h 17 min.